Introduction

Hi Everyone,                                                                                            Português

I am Idario Santos, married to my wonderful Soraya Carvalho; we have two amazing kids – Vinicius and Artur. Together we are the Santos Family.

In 2004 we found doctors in the US who could provide a cure for MSUD, a rare disease that was threatening our youngest son’s life. In 2005 my family left our home in Brazil and moved to  Pittsburgh, Pennsylvania.   Ever since, we have been living in this amazing city.

I want to help children suffering from MSUD and other Inborn Errors of Metabolism (IEM).  My book, A Sweet Odyssey, tells the story of our journey.  I hope reading it will inspire you to join our mission.

The book is about to be released. Please check back often to stay updated.

I also invite you to view our photo and video gallery, subscribe to my blog, and post any comments you have.

Thank you,

Idario Santos

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About idariosantos

I am Idario Santos -- father of two wonderful kids and maried to a great woman. This blog is a continuation of our odyssey...

Posted on June 25, 2011, in Uncategorized. Bookmark the permalink. 19 Comments.

  1. Idário & family, good afternoon. What a beautiful family! Congratulation!

    My name is Conceição, and as you see, I´m Brazilian; I´m Veronica’s cousin.
    I´d like to thank you all for being so nice with us. God bless you!
    You´ve gotten friends in Petrolina, Aracaju, Salvador (where I´ve been living), Santo Antônio de Jesus, and Recife. Our family, I mean, we admire you all.

    • Querida Conceicao,
      Muito obrigado por suas palavras de carinho. Eu me sinto muito feliz em poder fazer algo por uma crianca, pois, muitas pessoas vizeram por meu filho.

      O prazer em conhecer voce e todo meu. O Blog ainda nao esta publico, pois, falta algumas revisoes e adicionar alguns videos e testemunhos. Tambem, estou vendo como fazer-lo em Portugues. Assim que tiver tudo pronto eu aviso para voces.

      Sera muito importante que voce e as pessoas que voce conhece se registrem no meu blog, pois, isso vai me ajudar em mostrar para a editora que eu tenho (ou terei um publico). Para fazer, e simples. Basta clicar no botao SIGN ME UP NOW – que fica no lado direito da tela INTRODUCAO. Quanto mais gente se registrar, melhor para promover nossa causa.

      Muitissimo obrigado
      Com carinho,
      Idario Santos

  2. Idario, farei isso com o maior prazer. Posso começar a divulgar o blog? Ou devo esperar até ficar público?

    Now and forever: God blesses you all!

    Com carinho,

    Conceição

  3. Maria Betania Pessoa

    oi idario, sou maria betania,prima de veronica e irmã de conceiçao.
    q familia linda esta sua!!!!!!!!
    tambem faço questao de divulgar o seu blog.
    agradeço de todo coraçao tudo o q voce e sua familia tem feito por nossa nina.
    fiquem,continuem com Deus!

    • Querida Betania,

      Muito obrigado por suas palavras doces. Eu devo estar com o Blog 100% pronto e editado depois do dia 4 de Novembro e, possivelmente com uma pagina espelho em Portugues.

      Tambem, o dominio vai mudar. Eu estou pagando um pouco a mais, porem, da proxima vez que acessar, voce nao precisa mais colocar o subtitulo wordpress. Para acessar o site voce so precisa digitar: http://www.idariosantos.com . Assim, vai ficar mais facil para divulgacao.

      A proposito, voce(s) viram a materia que saiu sobre nossa familia na Globo Internacional? Se nao, aqui esta o link do youtube: http://www.youtube.com/watch?v=_kfkGGy8FTM

  4. It was so great meeting you and your beautiful family! And thank you so much for taking the time to speak with me about your lives! I am honored to be a small part of your journey and am looking forward to continue to follow you! 🙂

    • Dear Lindsey.
      It is our pleasure. Thank you very much. I am going to meet our friend Dr. Strauss in Lancaster. He is the one that is going to find a publisher and he through The Clinic for Special Children he will help me to promote my book as well.

      On my return, I’ll be publishing some testimonial videos on my blog.

  5. Rildo Remígio

    Dear friend Idario,

    Yesterday I met your brothet Ivaldo. Thought him, I learned of tour blog. I always looking for news about you and your family. I know a little bit your struggle e how God was present in your life.
    I’m just writing to congratulate you for everything and say that here in Brazil has many people rooting for you.
    Sorry my English rusty, but I preferred to write thusl, since you use such expressions severally simple and easy to understand for us Brazilians.
    A strong hug from a friend.

    Rildo Remígio
    e-mail: rildo.net@uol.com.br

    • My Great friend,

      I am so glad to hear from you. Your English is very good. How is your family. How many kids do you have?

      We had difficult time, but, right now we are trying to rebuild our family. As you know, life is not easy. I am going to publish my book (I hope) by June of this current year. I’ll need my friends help to spread it out among their friends and ask them to do the same.

      Did you have a chance to see the article broadcasted by Globo International? if not. click on videos on this blog and take look. Also, you can read some chapters on https://idariosantos.com/about-the-book/skeak-peek/

      Right now I have a journalist from Pitt University doing the final revision.

      I am really glad to hear form you. Come to visit us.

  6. Jadilson Macedo

    Idario,
    Muito bonito essa sua causa, espero que a sua divulgação alcançe os objetivos
    desejado e ajude pessoas que necessitam de orientação. vou ficar acompanhando o lançamento do seu livro.

    abraços Jadilson Macedo

    • Meu grande amigo. Estou feliz que voce acessou meu blog. Por favor espalhe isso para todos os seus amigos. Voce teve a chance de ver o video com a materia da Globo Internacional? Se nao, clique em videos e assista a materia. Assim que eu tiver o livro publicado, voce sabera. Obrigado

  7. Idario,

    My name is Brigitte Jones. I loved reading about your family and I must say that I can relate to the thought of MSUD because my niece and my nephew both have been diagnosed. They struggle everyday with this and they are only 4 and 2 years of age. Any advice that you could give?? They both currently receive disability and that took awhile to get approved. I look forward to your feedback.

    Thanks and Be blessed.

  8. Marx André Costa Soares

    Oi, Idário!! Sou o pai de João Guilherme ele foi diagnosticado com esse síndrome também sendo que ele não apresenta nem uma desses sintomas,estamos aguardando o resultado do exame leucina para mais detalhes.Mas desde já ele está tomando o leite MSUD,ele tem apenas 1 mês de vida . obrigado pelo atenção..
    Atenciosamente, Marx André Costa Soares
    Campina Grande – Paraíba – Brasil.

  9. Dejesanay Smith

    My daughter suffers from MSUD so I’m very interested.

    • Dear Smith.

      My book was already published in Portuguese in my home country of Brazil. The English version will be out in a month. I’ll keep you posted. Thank you so very much for your contact.

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